Checking In

Today I am tired.

Some days are like this.

A tired that goes so far beyond the normal wish for an extra hour of sleep or another cup of tea that I don’t know what I can relate it to.

And I am too tired to try.

Suffice it to say that a brain out of energy is a different tired.

It’s a – I tried to walk the dogs but found myself lying in the sun in the orchard on a 20 degree day- tired.

It’s the kind of tired I hope you don’t know.

But if you do.

I hope your feathered and furred friends check in on you, like mine did.

Two Years

It’s been two years since we hit the cow.

Two years and I’m almost back to where I was before.

Two years and I have realized it’s okay that I will never be the same as I was before.

Two years and I can do almost anything I wish.

Two years and my morning routine now involves planning my day out in 30 minute chunks so that I can do all those anythings.

Two years and I can play capoeira and complete a crossfit workout.

Two years and occasionally I “take to my bed” for the day like a Victorian era woman of poor constitution.

Two years and I have given up Diet Coke and virtually given up drinking.

Two years and a whiskey and coke would be the tastiest celebratory drink…

Two years and I can drive the hour to visit my family.

Two years and I will need a driver to make the three hour drive to see my best friend’s new house but I’ll be able to look out the window the whole time.

Two years and I can function under fluorescent lighting.

Two years and a crowded room has me plotting strategic movements and staking out the perfect locations so that I can visit without becoming overwhelmed.

Two years and I have learned (mostly) how to prioritize and let things go.

Two years and my lawn hasn’t been mowed in months – but I hear bees love that.

Two years and I can spend hours reading on my kindle.

Two years and I’m grateful John drives at night when I’m so tired the road signs are incomprehensible as they fly by.

Two years and I’ve become one of those annoying people who wakes up at the same time everyday without an alarm.

Two years and I’ve “sleep trained” myself into a strict schedule of bed every night by 11.

Two years and I can spend chunks of time on the computer.

Two years and I still need the sign on the computer reminding me to “WEAR GLASSES!”

Two years and I can cook without starting anything on fire.

Two years and cooking dinner is an entire night’s activity.

It’s been two years and a moment since we hit the cow.

It’s been two years and a lifetime since we hit the cow.

Two years of successes.

Two years of struggles.

Today has been two years since we’ve hit the cow and it seems that the light at the end of this tunnel is getting brighter.

Measuring

I start my day in careful thought,

Measuring out my energy in drips and dots.

A splash for breakfast,

A smidge for chores.

Waking the girls will require more.

I allocate a pinch for lunch,

But the drive to town requires a bunch.

Time at the pool gets a generous shake,

And it’s hard to see how much is left when there is dinner still to make.

I dole out smidges, dabs and bits,

Until the children’s night time hits.

I tuck them in and say goodnight,

Struggling to keep my words coming right.

I collapse on the couch, the well run dry.

But tomorrow, tomorrow, I’ll measure better.

Or at least I’ll try.

Useful No Longer

Today I had an excellent check up with my neuro-optometrist. These prism glasses I have been wearing a few hours everyday have done the trick! I know where I am in space again!

The glasses have been relegated to use only when I feel “really off.” Which I immediately translated to mean “don’t wear them until you start walking into walls.”

They have been a useful tool that is soon to be useful no longer! Now that is something to be grateful for.

Absolutely No Idea

After my concussion I listened to a book called The Ghost In My Brain by Dr Clark Elliott. I absolutely remember it being a fascinating listen into the Dr.’s own recovery from his concussion and it’s prolonged symptoms.

I absolutely remember that there was the perfect analogy and explanation of what low energy reserves and neuro-fatigue are like.

But currently, having spent the last week and a half bouncing from one energy reserve crash to another, I have absolutely no idea what that analogy was.

Tonight I have herbal tea and the fuzziest blanket it the world helping restore my world. Perhaps tomorrow will be a day for remembering.

One Year Later

It’s been just over a year since the cow. I’m still working through post concussion symptoms (PCS) (now with a neuro-optometrist and vision therapist), but I can easily look back and see how far I’ve come. There are many things that I still can’t do (drive for more than 30 min) or don’t want to do (read a magazine) because of my symptoms. But most days I’m able to look ahead with hope and be content with where I am. Most days. 

Some days I still wake in a funk, realize that there really is a pandemic, that my brain still isn’t back to normal and that whatever day it is is going to be just about like the day before. And that sameness of days has been the ugly silver lining of Covid-19 for me. Stores with aisles of items that shout out in colors and words as you walk by are horrible for post concussion brains. Groups of friends all talking and laughing are terribly difficult to navigate. Long car trips make me sick and it’s easier to take my afternoon nap in my own home than elsewhere. I, like the rest of the world, am sick to death of this virus and everything that goes with it, but there is no denying that it has made navigating PCS somewhat easier these last months. I don’t have to feel the blame of canceled vacations fall solely on my shoulders as I would have, we can blame it on the virus. I no longer feel like I’m avoiding friends and parties, blame it on the virus. It’s not just that I can’t go to the store because it will exhaust me, it’s better to order online now anyway. On it goes and the mental burden of PCS becomes easier to bear. The one thing that remains a constant nagging source of regret and frustration is writing.

I used to have this well of words and phrases bubbling over inside me. Paragraphs oozing together in my brain before I could even sit down and write them out. The well is still there but it no longer bubbles over. I can feel the words way down there, but the bucket leaks and the rope is frayed, the crank needs grease and the effort to haul the words to the top and keep them there is immense. Even then, sometimes all that makes it to the surface is half a phrase that flits away the minute I take my eye off it. And so I don’t blog, and I don’t write. 

One day I’ll be able to patch my bucket, replace the rope and grease the mechanisms and it will work smoothly again. One day the words will rise back to the top. I’ll go back to writing stories and I’ll go back to regular blogging. It’s frustrating but it’s going to be okay. Until then my regret is that during this completely insane time of a world pandemic and all that comes with it, I haven’t been writing about it. My memory has always been more like a sieve than a steel trap. I love looking back at years of blog posts and finding one that makes me laugh because I genuinely forgot not only the subject of the post but writing the post itself. PCS has turned my memory into a butterfly net with a hole in it being wielded by a toddler who recently ate an entire bag of M&M’s. I worry that I will forget this year and all that came with it. And maybe that’s a little bit okay. I’m not sure I really want to remember all the details of virtual schooling and days spent hiding in my room like a vampire to keep symptoms at bay.  

But there are things, like the Fourth of July parade the Clara organized for the neighborhood around our family cabin when the giant parade we normally attend was canceled, that I don’t want to lose. It was a wild success and I’ve lost the words of the day already, but I’ve sprinkled the pictures in this post of reflections so that maybe one day, looking back, it jogs a memory that manged to snag on that torn butterfly net along the way.

Edit: I sat down and wrote this just after the year anniversary of the accident -that was well over a month ago. But slow progress is still progress so I’ll take it.

 I have manged to be much more regularly active on my Instagram account behindthewillows come say hello if you are an Instagram user!  

Meditation- It’s Just Not My Thing Either

I’d like to start by saying that I believe you all when you tell me that mediation is a worthy pursuit and something I should not reject out of hand. Similar to yoga, which is also just not my thing, I believe you, I’m just not interested enough in the idea to put forth the amount of work that would be required to truly meditate. But I have been convinced enough in its merits that I have been listening to guided meditation once a day.

You see, since my concussion, I have required at least one nap a day. Some afternoons I still crash onto a flat surface and pass out because my brain is too tired to do anything else. But, thankfully, more and more often I lay down and think of all the things I should get up and go do. Which is great because it means I’m not totally wiped out. However not sleeping still leaves me a headache-y, emotionally raging mess for the rest of the day – nobody around here wants me to skip a nap. At the same time numerous people (I swear you don’t need too as well, I got the message) have told me about the benefits of meditation and because I’ve changed many aspects of my life style to become much healthier (so many veggies, almost no caffeine or alcohol, so much more sleep…) in effort to help heal this broken brain of mine, I thought that perhaps I would try it.

I was already quite certain that listening to something to fall asleep would help quiet my head enough to sleep because I’ve been falling asleep to Anne of Green Gables and the like for months. Now I’m to the point where I’ve just about run out of everything my favorite LibraVox reader has available (Its Karen Savage, she will spoil you for all other readers, you are welcome). So it seemed like it was time to try it. No problem. I would just change what I listened to for my afternoon nap.

As it turns out I was right. I don’t like meditating.

Unsurprisingly, for my husband anyway, I get super argumentative when I don’t like something. And yes, I am happy to argue with a recorded voice.

Voice: “…the full moon is shining down on you and there are thousands of stars in the sky…”

Me: “You can’t see thousands of stars when the moon is full. It’s too bright.”

Voice: ” It’s raining and everyone is happy and sleeping in the rain, …. the chickens are happy and sleeping…”

Me: ” Have you never met a chicken? Chickens hate rain!”

Voice: “There isn’t a cloud in the sky and the sun beats down on your head as you let your worries go.”

Me: ” I’m too hot.”

However, despite all my arguing with the serene voices, they have always distracted me enough to allow me to take my needed nap, often complete with dreams…

Actual nap time dream:

I’m standing at the end of a huge tunnel with a group of people – obviously some sort of resistance fighters from the way they are dressed. A soft voice echos down the tunnel, “let go of your stress… relax… take another deep breath and let it all go…”

“Don’t listen! They are trying to lull you into complacency!” screams the resistance fighter next to me. “Get ready! This is when they come for us!”

Meditation… It’s just not my thing either.

Zen I Am Not

The world is full of people and articles and memes and cute rugs and inspirational posters and sassy bumper stickers that all tell us that we should live in the moment. They proclaim that we should focus on what we are doing and not dwell on the past or dream of the future so that we can enjoy the present fully. I’m here to be argumentative and contradictory and say that’s an absolute horseshit way to live your life.9c0dcd10f1c79da228208860590c6c75

I feel that I have some authority to say that because, despite my best efforts not to follow this advice, my concussion and resulting long recovery has forced me to “live in the moment.” All. The. Time.  Sadly this is not because I’m cherishing the fact that I am still alive or that I’m savoring every moment of my children’s bickering because one day they will be grown and the house will be quiet and I will miss them. No, instead it’s that for many months it has been extremely hard for me to think of anything beyond what I am doing.

Being forced to live in the moment is hard.

If you live fully in the moment you must set time aside to think about the future. As in, stop and think what will be for dinner and how it’s going to be made because you are not capable of thinking of what is for dinner while you change the laundry.  There are many moments that I have been happy to be fully present for. Laundry, however, should be for multi-tasking, wool gathering, dreaming, scheming and planning dinner.  In fact as opposed to living in the present, I want to be more like Anne of Green Gables who dived into beautiful moments with her whole heart and dreamed away all the mundane ones.

“I don’t like picking fowls.” She told Marilla, “but isn’t it fortunate we don’t have to put our souls into what our hands may be doing? I’ve been picking chickens with my hands but in my imagination I’ve been roaming the Milky Way.”

Anne of Avonlea by Lucy Maud Montgomery

I continue to recover but as I do I still find multi-tasking extraordinarily challenging.  And yes, many would say that’s a good thing. But please people, I am a mother, I run best on a steady diet of caffeine and multitasking. Now I have minimal amounts of both and I’m making do, but this is not how the world was meant to be. Above and beyond the daily challenges this “living in the moment” brings, I find it terribly hard to write.

B.C. (before cow) an idea would float by while I was walking the dogs. I would let it roll in the back of my mind while I fed the chickens. The idea might percolate back to the surface while making lunch and start arranging itself into paragraphs while I drove to pick up the kids. By the time I found myself in front of the computer, sentences, already lined up in my head from a day of dreaming and multitasking, would flow from my finger tips.

No longer.

I’m living in the moment and that’s a horseshit place to be when you are a dreamer at heart.

Luckily my dreams have been swimming tantalizingly close these days. Stories form in my head only to skitter away when the kids ask a question. Blog posts try to write themselves in the half awake moments of the night. Snippets of phrases pass through and fade away. Trying to catch the idea is like finding a dragon in the clouds only to watch it change and blow away. But I can see the dragon again and that’s a very good sign.

The Therapy

The Therapy

or

Part 4 of Where I’ve Been The Last Four Months

Part 1: The Cow

Part 2: The Omelettes 

Part 3: The Concussion

I needed help but I was unable to read and research anything on my own. We had already learned that most doctors don’t know what to do with concussions and had no idea where to turn for advice. Fortunately, a friend let us know that physical therapists can have concussion training and, even better, my current physical therapist was one of them.

Within the first two weeks I was working with him doing things that should have been painfully easy but were next to impossible for me.

Can you hold your arm out in front of you, look at your thumb, close your eyes, turn your head, open your eyes and still be looking at your thumb? I couldn’t. It’s depressing not to be able to find one of your own body parts and also vindicating. Something really was wrong with me.

From my therapist I learned that my sprained neck muscles were messing with my positional awareness and my inner ear or vestibular system was also out of whack… and my eyes… well they didn’t track quite like they were supposed to either.

I diligently did my therapy. I tracked post it notes with my eyes and worked on word searches that had no words. Everything spiked nausea, dizziness or headaches. I’d wait for symptoms to subside and do it again.

If you’ve been to physical therapy you know how they give you small, evil exercises that are hard and exhaust your muscles. Working my brain was just like that. Instead of burning muscles I had nausea and instead of wobbly fatigue I had headaches. But I kept on. Working until the symptoms would spike. Letting them come back down and doing it again and again until I could find my thumb and track the post it notes. Then of course in true PT fashion no gold stars were awarded. (If you are a physical therapist you really need to consider giving out stickers. I’m telling you a sticker chart would make even adults feel accomplishment.) Instead I was congratulated with another small but deceptively evil task. Eventually I graduated to word searches with words and tracking medicine balls as I moved them around my body.

And slowly.

So slowly.

My brain started getting better.

nanopoblano2019

It’s November and National Blog Writing Month! My team, the Tiny Peppers, is doing things a little differently this year.  Instead of posting every single day we are all aiming for: 10 days of posts, 10 days of reading/commenting, and 10 days of sharing posts through any other platform.  Happy Blogging! 

The Omelettes

The Omelettes

Or

Part 2 of Why I’ve Been Missing for Four Months

Read part 1 here: The Cow

After the cow we called the authorities and we called friends. Kind strangers stopped at the side of the road to help. Kinder friends drove us to the ER and took care of our children. We were bruised and scraped up, shaken and exhausted but most definitely alive and grateful.

In the morning we told the girls what happened and Clara responded by making us the best omelette I’ve ever eaten.  It was stuffed with chorizo and cheese and delivered it to us in bed. As we went through the day it became clear that in addition to the bruises and scrapes, our brains had been addled in the run in with the cow.

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John couldn’t come up with the right words and I couldn’t stay awake for more than an hour. In short, we had concussions. Clara laughed at John’s language slip ups and made us another omelette with fresh garden herbs.

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My mom drove Ivy to her summer camp, Clara fed us omelettes with cherry tomatoes that she picked when she went to collect the eggs with Jane. Friends picked up the girls and took them for the day (but not until Clara made us omelettes with edible flowers as garnish) and dropped off more food. We were extremely well cared for while we rested and recovered.

By the end the of the week, John was more or less back to himself. He could read, he could drive, he tired easily but he was clearly on the mend.

I was not.

And Clara, she expanded her omelette making to include vegetable faces…img_2042.jpg

…and we were all grateful.

nanopoblano2019

It’s November and National Blog Writing Month! My team, the Tiny Peppers, is doing things a little differently this year.  Instead of posting every single day we are all aiming for: 10 days of posts, 10 days of reading/commenting, and 10 days of sharing posts through any other platform.  Happy Blogging!